Thursday, December 13, 2012

Day one - personal voodoo doll

   Today I had my first infusion of Cinryze! My home health nurse, Ginny, came around 10 am this morning and I felt like a little kid waiting for Santa Clause as I sat at our bar watching out the kitchen window for her to arrive. Ginny is a sweet old lady that has been a nurse likely longer than I've been alive and could probably start an IV on a goat if she had to; that's the kind of person that you want to have teaching you how to stab yourself with surgical steel on a regular basis.
 
   This is my two week supply that I mentioned yesterday. Yes, I get a box filled with all of these medical goodies once every TWO WEEKS...good thing we don't pay for trash removal!


  Out of that two week supply, this is what I will use (plus some random bar paraphernalia) for each infusion :

 
   I'm one of those weirdos that likes needle sticks, (tattoos, piercings, things of the sort), so I figured you know what? Day one, I might as well go balls to the wall and try to insert the needle into my vein all on my own - worst case scenario, I miss and either my nurse or my paramedic lovebug will take over and restick me correctly. However, being the perfectionist that I am, not accepting failure or defeat ever, you better believe I got that sucker on the FIRST STICK (!!!!!!!) with my non-dominant hand, mind you.


   My infusion went very well, without any adverse reactions so far, but I have my handy-dandy Epipen standing by just in case. This new regimen is going to be an added hassle, and is going to make things like traveling a little more difficult; but if I get the relief that I'm hoping for from it, it will be more than worth the sacrifice of time and effort.
   Ginny will be coming back on Sunday for round two, and hopefully Mom and Dad will be joining us - the more people that know how to do this for me, the better. I definitely am looking forward to the bonding experience that will be allowing my parents to stab me with needles...

   ~Somewhere between always and forever, Chelsea Leigh
 

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