IMPORTANT!!!

   I was just contacted by my doctor's office stating that they had received an incident form claiming that I had been having reactions to my Cinryze treatment. This form was submitted by a pharmaceutical company of which I've never heard of, and I am working to get to the bottom of the information trail. 

   In the meantime let me make a few things VERY clear to anyone who reads this blog:

• This is MY place to write about my PERSONAL experiences, currently relating to my health issues - I may vent, I may complain, I may seem like I'm shitting rainbows - regardless, this is MY place, MY domain
• For the record - I am ABSOLUTELY NOT HAVING ANY ADVERSE REACTIONS TO THE CINRYZE THERAPY I HAVE STARTED!!!!! Yes, I am going through some of the symptoms of steroid withdrawal, BUT THAT'S BECAUSE I'VE BEEN TAKING THE DAMNED THINGS FOR 6+ YEARS AND I NO LONGER AM. For Christ's sake, have you NOT read any of the other information correctly?!?! YES I am having withdrawal symptoms, I also was experiencing them when I tried to ween off of them previously WITHOUT Cinrzye therapy
• I am a grown woman and can take care of my medical and health concerns ON MY OWN. I do NOT need or want ANYONE ELSE trying to do that for me, especially and specifically someone who is unnamed and knows NOTHING about me other than what you read here
• I will find out who it was that submitted this information/form, and you will have hell to pay - you had NO RIGHT in doing so, and you completely violated my medical privacy. How you were able to take information from a blog and were able to carry it through to the point of a form being submitted to my doctor's office completely disgusts me and I'm doing some investigating into my medical rights because I have NO personal information available here other than my name, so clearly information was being given somewhere by an entity that DOES have access to it and I am NOT happy about that in the least

   This was supposed to be a way for me to share my story, and for me to get support from family, friends, and other people in my shoes. WHOEVER YOU ARE that did this, has completely ruined that for me, and quite frankly you've really PISSED ME OFF. You do NOT know who you just fucked with, but I assure you, you're going to wish you hadn't; if you felt so strongly in needing to help you could have at least ASKED me if it was something I was interested in pursuing first and I would've explained to you that you were not reading the information correctly, that the steroid withdrawal is NOT due to Cinryze therapy, but instead something I've been trying to get away from (steroid treatment) for quite some time and Cinrzye has allowed me to do so. COMPLETELY different than steroid withdrawal due to Cinrzye. How does that even make sense?   

   If whoever was involved in this process would like to own up to it, there are plenty of ways/means to contact me, so please do so. Unfortunately, this may be one of my last public posts because clearly, some of you assholes think you're above the system and are completely untrustworthy.

   Allow me to reiterate one last time - I do NOT need or want help. I have all of the help I need. Friendly comments and notes of encouragement are all I've ever wanted and been looking for here. 

   I've been crossed, and Hell hath no fury like a woman scorned, ESPECIALLY this one.